Sharing Your Information - What this means to you
There are two main kinds of data sharing:
- Sharing your information with clinical staff that can directly aid your treatment and care (Summary Care Record & Enhanced Data Sharing Model).
- Sharing your information to allow the NHS to manage services and quality (Care.Data).
Summary Care Record (SCR):
A few years ago, all patients were written to informing them about the SCR. You were given the option to 'opt out' if you did not want a SCR.
The SCR includes; allergies, sensitivities and medications. Additional information can be added with your permission.
Emergency clinicians are able to look at this if you attend A&E, Ambulance, Out of Hours GP's, Walk in centre's and Minor Injuries unit.
If you are able, clinicians need to ask you permission to view this information.
If you are not able (unconscious etc.), clinicians can view without your permission but this alerts a senior person in the organisation.
You have a choice:
- If you would like a SCR, you do not need to do anything.
- If you would like a SCR and would like to add more information, please let the receptionist know the information you would like added.
- If you do not want a SCR, please let the receptionist know and we will code your record to prevent this being available.
Enhanced Data Sharing Model (EDSM):
This method of sharing was launched in 2013 and it allows clinicians that are treating you to see more of your GP record (unlike the SCR which is very limited). Information is only sharable between services using the same computer system (SystmOne).
Services wanting to view your record need to ask your permission.
You can choose to make items in your record private and these items would not be shared outside of the practice.
All clinicians that have access to your records must use a Chip and Pin card and everything in your records is auditable.
Having access to this information can save valuable time which means you are treated faster, more appropriately and safer.
Services that use this computer system locally are;
- Many GP practices
- Community Services - District Nurses, Health Visitors, Physiotherapists, Neuorological Rehab, Palliative services & Podiatry
- Local Hospitals - A&E, Medical Assessment Unit & Paediatric departments
- Tapping House Hospice
- East Anglian Children's Hospice
- East of England Ambulance Service
You have a choice:
- You can choose to make your information recorded at the practice sharable to other services.
- You can choose to allow the practice to see information that has been recorded elsewhere.
- You can choose not to share any of your information.
For further information on the EDSM Practice Policy & Information leaflets, please see the sharing leaflets below.
This is information that the NHS use to manage services and quality across the country.
You should have received information regarding the Care.Data service through the post.
It only takes some of your information.
It identifies you so it can match you to other parts of the NHS where you may be treated.
Information that identifies you can ONLY be used by the NHS.
Information that is extracted can be stripped of anything that can identify you and then used for research purposes.
You have a choice:
- You can agree to your information being used - you do not need to do anything, this will automatically happen.
- You can agree for the NHS only to use your information to manage services and quality - you need to inform the receptionist so that they can code this on your record.
You can decide that you do not want any of your information used at all - you will need to inform the receptionist of this so they can code this on your record.
To watch a short informative video about the care.data programme, click on the link
For further information, click on the link